I love picking out paint colors. There is something glorious about walking up to a wall of colors that exhilarates me – I get the same rush when I go to the art supply, fabric store, yarn shop or even Pottery Barn or Nordstom’s for that matter. The possibilities abound and whether or not I’m choosing colors with a purpose or wild abandon – I love a well combined pallet!
For a few years at the beginning of dealing with my AS, I was on a lot of medications for the pain and I just couldn’t see the colors or maybe I didn’t care – dealing with chronic pain takes simple joys out of life in so many ways. I’m not sure how to explain that but I didn’t get the thrill from my art that I get now that I’m on the Remicade and feeling relatively well. The disease had me in it’s grip and the initial medications didn’t allow me to be me – that big piece of who I am. I am so grateful for Remicade and how much of my life I have back since starting on it. There are many people dealing with AS who are either afraid to start a biologic medication for fear of the possible consequences or they aren’t able to access them due to insurance reasons. This is a big problem and people need to know that life is better for so many on these types of medications and we need to help figure out a way to give people more access to this care.
Day 59 is a collage made with paint chips.