I am guilty of wanting to get something big to happen in the world of spondylitis awareness. It has been my whole mission and constant and full time work for over 10 months – many days working 10-12 hours much to the dismay of my husband and family. I have had a single mindedness and felt so driven that at times didn’t border on obsession – it has been an obsession.
I have been guilty of passionately wanting something so badly. I want for people to understand what AS means as much as they understand what diabetes or RA or Lupus means. I don’t want anyone to have to deal with the huge lack of understanding that exists. I believe that in sharing my project and my art and in sharing our stories while living a positive life in the face of the pain and illness, that we have a chance of going beyond our community – which is what I see is needed to raise awareness. We cannot have the world know about this disease if we only speak to those who know about it already.
I am guilty of wanting to help. I have made some wrong turns but, I have fulfilled my commitments – every day. All I can do is continue in the face of difficulty, work as tirelessly as I have, and believe in myself and my intentions and my heart. That is all I can do. So I will.
Day 309 was created in mixed media – pen & ink, thread, acrylic, and watercolor.