Some days – heck, lots of days we all want to quit. We want to just throw in the towel and say, “That’s it – I give up!”
Life with a chronic illness makes these times seem like they are our existence more than they are a passing emotion. I struggle with trying to talk about my disease and the topics that surround it. I have an enormous desire to not let AS become my identity. I refuse to let that happen actually.
That might seem odd to people since I have made it a personal crusade to tell the world about spondyloarthritis in all its forms but health activism is what I do – it isn’t who I am. Some days I know that I will feel exposed, naked, vulnerable because what I do demands that I show you my life. And when I feel like giving up I’ll remember that who I am is a wife, a step-mom, an artist, a friend, a gardener, a lover of color and laughter – a human being – so I will make decisions the best way I can. I promise to keep going … to hold my head up high.
Day 234 was created in mixed media.
I thank goodness for the outlet I have with my art – it allows me to express in a personally powerful way.