Day One – Retrospective Post

Today is Day One of the Art Apple A Day Retrospective – for information on the project click here.

Day One – October 1, 2010

I had just been reading one of Seth Godin‘s books (who at one point I emailed and actually received an email response – gosh I wish I still had that email)

And that’s when I got a wild hair.

Truly, that was what it was because seriously… what was I possibly thinking? A piece of art every day paired with a blog post? I had no idea what I had just set myself up for.

Anyway… I had been reading his book, The Bootstrapper’s Bible, because I was at a point after years of struggling with my health that I was finally seeing that life might be able to go on. I had to figure out what the heck I was going to do with myself. I had managed first a part time job, then a full time one that required two hours of commuting a day and occasional travel and getting those jobs required some major finagling having been out of the workforce for so long. The pace I was managing is extremely difficult for anyone I told myself but I desperately did not – could not – go back to where I was before the therapy and medications started working. I realized I had to design my future in a way that could accommodate my limitations. I quit the full time job with no clear path forward.

(There is actually more to this point in the story and I’ll share it at some appropriate time during the next 364 days – it’s a doozie!)

During this crossroad, reading Mr. Godin’s book and manifesto to hopefully figure something out, the first two sentences caught me and sparked the idea:

“I am a bootstrapper. I have initiative and insight and guts, but not much money.”

~ Seth Godin

The job realization beat down what little self confidence I had built back up and I now know that being a Bootstrapper with a chronic degenerative disease was a book in and of itself and the one that might have been more appropriate but I’m the ‘leap and the net will appear’ kind of person.

Here I was, I had no money and no job. Thankfully my husband cared for me all those years I wasn’t working but we didn’t have the resources for me to launch any kind of endeavor and the what ifs were piled so high I couldn’t see past them. However, the me from “Before AS” was a bootstrapper at heart and I’ve always been called to create. Reading the manifesto I realized that if I shared my story in a small and joyful way it could be an entré to building confidence and finding my way back to myself which would lead me to design that life I was looking for.

And, so, I quickly created this extremely simple digital apple on my phone (you can see how low the quality is – this was a phone app from 10 years ago!) and posted it immediately so I wouldn’t lose my nerve! I was afraid if I waited to the following day to create in the traditional way I was proposing, that I would talk myself out of, “Art Apple A Day” and I can’t even imagine my life now, without this being a part of me and the AS community.

To see my first post from 10 years ago click here or on the image above.

And the story will continue tomorrow!

Art Apple A Day – 365 Apples Created Everyday For A Year!

Hello & welcome!

JennaVisscher_BlueAppleforSpondylitis

Thank you for your interest in the Apples For AS. The Art Apple A Day project was created by Jennifer Dye Visscher to help raise awareness of a disease she has called Ankylosing Spondylitis.

The apples are posted in blog format so you will see the last apple first. To start from Apple ONE please visit here.  Each apple is posted with thoughts, ideas, and in a blog or diary format. If you are looking for specific information related to this project or about spondylitis you will find a search box in the top black bar for your convenience.

To stay up to date on the latest happenings with Jenna, please stop by her current website JenniferVisscher.com 

All my best, and thank you for learning a bit about my apples and their significance!

JennaSigSm

Day 361 – Happy Apple Day!

Today is Johnny Appleseed Day!

I for one will celebrating and thinking about the glorious apple.

They have come to mean so much to me and hopefully to you all as well. Maybe I had apples on the brain all those months ago because it is simply the time of the year for the apple harvests. Perhaps it was that the adage “an apple a day keeps the doctor away” was so meaningful at the time but for sure the idea sparked in me for a reason.

What do you think Johnny Appleseed would think of blue spondylitis apples? I have a feeling he’d approve!

Until tomorrow.

Jenna

Day 361 was created with a few separate images of an old Johnny Appleseed $.05 postage stamp pieced together to make into a square instead of a rectangle as the original stamp was created. Ink and watercolors to give it a bit of paint and color!

*** My Mom asked me to add a note to today’s post that she plans on responding to every comment that you all made on her guest blog post from Day 350 – My Mom’s Perspective. She was so touched by your comments that she wanted to have the time to respond thoughtfully to each of you. I will post here once she’s done in the next week or so. In the mean time she’s says she’s looking forward to the Apple-A-Thon!

Day 359 – Our Skeleton Key

A skeleton key has come to symbolize something that can unlock a mystery.

Sometimes I think that Ankylosing Spondylitis will always remain somewhat of an enigma to me.

I wish I could unlock each door I have to pass through on this journey with my health and know what was on the other side. I wish we all had a magic key – an AS key to be a symbol or talisman to help us get through times of change with courage and strength. It might look something like this!

Until tomorrow.

Jenna

Day 359 was created in gold ink and watercolor.

*** I’m stunned and awed by the support that is coming in. A big thank you to everyone who has donated to the Apple-A-Thon fundraiser.

*** We received our first corporate donation today in the amount of $500 from BJC Health in Australia! who will be putting their commissioned apple in the lobby of their Spondyloarthritis Clinic – too cool.

*** Thank you Tom Contrino for your $150 donation!

In The Studio

Thank you Doug for working tirelessly today.

Thank you to my parents for working tirelessly today!

Thank you to Bill Beckwith of School House Farms for donating a bushel of apples for the event!

Day 358 – Don’t Be Fooled By The Calendar

Don’t be fooled by the calendar.  There are only as many days in the year as you make use of.  ~Charles Richards

Oy!

Every day is made use of even the ones where we rest, reflect, and chill! I remember the days on end when all I wanted was some relief of my symptoms. I know many of you are still in that place and I so wish it weren’t so. I still have those days although they are fewer between. I am feeling a huge responsibility to make sure that I express correctly how difficult most of the days with Spondylitis can be.

Please know I will do my best in my upcoming interviews. If you can express for me how you would say it – it would help me.

Until tomorrow.

Jenna

Day 358 was created in watercolor.

*** Thankfully computer issues resolved!

*** Thank you to the Spondylitis Association of America for this wonderful page sharing the Apple-A-Thon

*** Have you seen the donations page? Holly set up a great page – please take a look!

*** Guest Apples are flooding in – please send in yours too. Here all the news that’s fit to print.

Day 355 – Pulling Myself Together

“Pour yourself a drink, put on some lipstick, and pull yourself together.” – Elizabeth Taylor

Good plan. Will do!

I’m headed to the mall to shop at Nordstrom’s Rack in the hopes of finding just the right outfit for my t.v. appearance.

Oops – did I let that slip out?

Yes indeedy folks – I will be interviewed on a morning show in NYC the day before the Apple Paint-A-Thon and I need to make Liz and all of you proud. I will pull myself together!

One of my dear and best friends, Stacey is meeting me there tonight to help me come up with something that looks a bit more cosmopolitan and a bit less Colorado dusty back roads. I may even put on a bra! Special times call for special circumstances.

Love to you all for your continued and much needed cheering on. My thoughts with Betsy and her family tonight.

Until tomorrow.

Jenna

Day 355 was created in – lipstick!

Day 345 – Life After Apples

A lot of you have asked me, “What comes next?”

Great question! I hope the answers I have will lead to things just as great. Here are a few areas I have outlined. I hope you all continue to follow me as my journey switches focus a bit this fall and in the years ahead.

Here are my plans – we shall see.

1. I’m not going anywhere! I will continue to blog here at The Feeding Edge and work for AS awareness and other health and social issues. My scope will just widen a bit. I’d love to also continue to create occasional “Apples For AS” and support the SAA in any way I can. I believe in what they do and I don’t think anyone does it better!

2. For the last year I have been an artist, blogger, and health activist. I did not focus on making a living. That was not where I wanted to put my energies. I decided to spend the year raising AS Awareness and that took all of my energy – well, along with making apples! Moving forward, The Feeding Edge will become a Social Enterprise. What’s that you ask? From Wikipedia (I know) “A social enterprise is an organization that applies capitalistic strategies to achieving philanthropic goals. Social enterprises can be structured as a for-profit or non-profit.” Additionally the primary purpose of the company is a social aim.

3. So what is my social aim? I will work to assist and learn from other artists who suffer from chronic disease and who wish to establish an entrepreneurial social enterprise for their emotional and financial well being.

4. To the moon and beyond… my loftiest goal is to strive to develop a non-profit organization –  The Art For Good Foundation – with artists and social activists everywhere to support issues for the common good. I reserved the domain name months ago – we’ll see where this goes. The Art For Good Foundation will be a vehicle to find ways to do good things for the world through art. It broadens the scope – includes any and all social programs and artists.

Big dreams? You bet!

Until tomorrow.

Jenna

Day 345 was created with watercolor, ink, black thread, and pastels.

***A big thank you to my Mom, Susan Dye, who is helping me organize my thoughts and reining me in when necessary. She will be joining me as my path switches to the above endeavors and helping me administer and manage while attempting to stay retired at the same time! You’ll meet her on Monday – she’s written a post that we will share with you all. When Doug read it a few minutes ago his comment was, “Your Mom is wonderful!” He’s very right on this one – she absolutely is!

Day 344 – Let’s Do This!

I want people to know what Autoimmune Arthritis is and specifically about Spondyloarthritis – a group of diseases that cause pain and suffering in millions of people. They are Ankylosing Spondylitis, Undifferentiated Spondyloarthropathy, Juvenile Spondyloarthopathy, Psoriatic Arthritis, Reactive Arthritis, and Enteropathic Arthritis.

I want people to understand how challenging these chronic illnesses can make life. I want this so very much because I know personally what it is to live through pain and fatigue as well as the confusion of looking for years for answers to the pain that was robbing huge chunks of my life away. I know how difficult it is to continue on day after day and put on a happy face because you are afraid people will judge you if they know what you are dealing with. I want understanding and empathy for my AS family. I wanted it when I didn’t know them, just what they went through. But I want it even more now (I didn’t think it was possible) because I’ve traveled this last year with them. I’ve heard and understood what they are going through. All of you who’ve been with me, or just joined me, or I’ve yet to meet. I’ve been making apples in the hopes they will help spread understanding and awareness.

I have been making apples.

I paint them, I draw them and I use string and glue, pastels and acrylics. I use apple images to create and build day after day so that one day I’ve got something big. Something that cannot be ignored or turned aside, something that hopefully will gain the attention of people who have no understanding of what we endure. At least that has been my hope. I felt that if I could build something big enough, I’d have a way to get people to slow down and take a look. Even if that look was for a few minutes, those few minutes are all we need to say, “please hear us, share our stories and help us find a cure…”

I’m not good at asking for help. I never want to impose on anyone or burden others but I’m going to ask you all to share this story with me. With your help it becomes about all of us and it becomes bigger and continues to grow and with your participation more and more people may take those few minutes to slow down and learn about this disease.

I simply ask for 5 minutes of your time, maybe your child’s time, and maybe even their entire class or church group or neighborhood can take the time to create an apple. A piece of art that stands for something so much bigger. I then ask you to photograph or scan them, post them all over with the simple phrase “Please hear us and help us turn the blue apple green for a cure for Spondylitis” or use your words and share whatever is in your heart. I will be painting apples in NYC – The Big Apple – for 24hrs straight because I need people to hear us. It is my personal way to try to make that happen – I’d love and so appreciate it if you join me.

If you can come to the event please bring your family and share our coming together as a community and help us support the organization that gives us so much – we’ll be raising funds for the Spondylitis Association of America. For any apples received via mail or email – I will take them to NYC as part of the fundraiser. Your apples will be raising money too! I think I can paint 200 apples in 24hrs – my challenge to you is for all of us to match the last year of apples I created each day. Can we gather 175 more apples? I know we can! Paint one, paint two, paint as many as you can! And, here’s the really super news… the SAA has been awarded a challenge grant this month from the Jean & E. Floyd Kvamme Foundation that will match donations dollar for dollar up to $50,000! Can you imagine if we could match those funds! The amount of good the SAA can do with $100,000 is staggering!

For those who can’t be at the event. From wherever you are from all over the world, please be with us in spirit and post those apples on Facebook pages and on twitter and wherever else you can. Email them to the President, to Oprah, to your local governments or Spondylitis Group. Our apples can make a difference!

Please email your apples as a .jpg or .gif to jenna@artappleaday.com Your apple via email will be printed out once and be sold in conjunction with the fundraising efforts for this event. You retain all artist copyrights beyond this one fundraising use. You will be contacted if there are any other ways we’d like to show or use your art to ask your permission. If you are sending a digital image we ask you keep the original in a safe place – future goals are for exhibits of all our apples!

I will include the guest apples I’ve received at The Feeding Edge over the last year. For apples to be included in the Apple-A-Thon fundraiser event, your apples need to be emailed directly to me at the address above or sent to my P.O. Box (address on Contact Me page) Due to the amount of time it is taking to plan and prepare for this event, the apples may not be posted on the Guest Apples Page of The Feeding Edge until after the event. All apples will be posted on The Feeding Edge FB page – please make sure you’ve *liked* the page to see and share your apples! Apples, photos and video of the Apple-A-Thon will be posted there as well as close to live as possible! Please join me … “Be part of the story, be part of the cure!”

Until tomorrow.

Jenna

Day 344 was created in grease pencil, watercolor, and pastels.

Day 342 – Anything Can Be

Listen to the Mustn’ts, child,
Listen to the Don’ts
Listen to the Shouldn’ts
The Impossibles, the Won’ts
Listen to the Never Haves,
Then listen close to me —
Anything can happen, child,
Anything can be. – Shel Silverstein

I’m being drawn to the words and images of the great children’s writers. I wish we could keep being told the lessons we teach our children; the lessons of love and persistence and of starry eyed dreams of childhood.

As an adult it is so difficult to keep going after your dreams and to continue to believe that anything can happen, anything can be.

Do not listen to naysayers. We sure as heck wouldn’t let our children listen to them. Hold on to your dreams and don’t listen to anyone who insists on telling you what you can’t do.

Dig up those stories and listen to their messages…

Dream.

Hope.

Believe.

And sprinkle in some pixie dust for good measure!

Until tomorrow.

Jenna

Day 342 was created in pen & ink in the style of Shel Silverstein with a twist – a little girl instead of a boy and a blue apple for spondylitis instead of a yellow star.

Day 338 – An un-Saturday, Saturday Apple

I was all ready to post a Saturday Apple.

In order to attempt to have a life that went beyond apple making, I instituted the “Saturday Apple.” These apples have often times been simpler images with almost no post. The decision to reel in my apple life on Saturdays may have saved not only my husband’s sanity but mine as well and I have come to look forward to them as much as I’m sure Doug has.

But today, after completing my apple I saw a post on Facebook about the risks of taking biologic medications. These are fairly frequent conversations – as they should be. Taking biologic medications are a serious decision to make and everyone has to decide for themselves what choice is best for them. I have people ask me about how I decided to start on them quite often since I speak on this blog about how effective they have been in my case. For me, it was a choice to do anything to stop the suffering I was in regardless of consequences. Luckily and fortunately – it has worked for me and I feel blessed everyday I’m better. If tomorrow it isn’t or I become ill – I will never regret that I have been given these last 5 years back.

What struck me about the question tonight that was so different than usual discussions was that a physician told this person that they would absolutely not prescribe them unless the patient insisted because of increased risk of getting cancer. Here is a report about this exact topic that came out a few months ago at the yearly EULAR conference. EULAR is the European League Against Rheumatism. The report shows no increased risk.

…..

…….

Yes, I was a bit stunned by this too.

I’ve decided to not pass judgement or write a commentary on this. I’ll just report what I heard. But what I would like to say is that there are risks to everything in life and most certainly in this crazy world bad things unfortunately happen all of the time. I choose to live for today and not worry for tomorrow – it is my personal decision – I’m not advocating my choices for anyone else. People unfortunately get cancer, we get AS, we have heart attacks and life is difficult – I’m stunned everyday by the tragedy and difficulties that people have to endure. I just don’t want people to suffer needlessly – for any reason. Naive and idealistic, I know but that is what I wish for as a person working to raise awareness of a painful and often times debilitating disease.

Until tomorrow.

Jenna

Day 338 was created in watercolor, pastel, mesh origami “paper”, polka-dot paper, thread, ribbon, and a stick pin.

*** I encourage and appreciate debate – please feel free to comment and disagree. Our shared views only help one another and increase understanding of how difficult it is to live with a chronic illness.